Objective: The objective of this review was to examine community-dwelling older people’s experiences of advance care planning with health care professionals.
Inclusion criteria: Studies with participants aged 60 years and older who have experience with advance care planning and live in their own homes in the community were included. We considered qualitative studies and the qualitative component of mixed methods studies published between January 1999 and April 2023 in English or Japanese.
Methods: MEDLINE (EBSCOhost), CINAHL (EBSCOhost), Embase, PsycINFO (EBSCOhost), JSTOR, Scopus, Japan Medical Abstract Society, and CiNii were searched for published papers. Google Scholar, ProQuest Dissertations and Theses Global and MedNar were searched for unpublished papers and gray literature. Study selection, critical appraisal, data extraction, and data synthesis were conducted by 2 independent reviewers using the JBI approach and JBI standardized tools. Findings were pooled using a meta-aggregation approach. The synthesized findings were graded using the ConQual approach for establishing confidence in the output of qualitative research syntheses and presented in a Summary of Findings.
Results: Five studies published between 2017 and 2022 were included in the review. Each study scored between 6 and 8 out of 10 on the JBI critical appraisal checklist for qualitative research. We extracted 28 findings and aggregated them into 7 categories, generating 3 synthesized findings: i) A trusting relationship with health care professionals is essential for older people’s decision-making. Health care professionals’ attitudes, knowledge, and skills play a role in this, influencing the perceived quality of care; ii) Shared decision-making and patient-centered communication are essential. Older people feel ambiguity toward end-of-life decision and advance care planning, and they want their wishes to be heard in any situation to maintain their autonomy and quality of life; iii) Older people need the appropriate forms and accessible and coordinated care to begin advance care planning.
（Kieko Iida, Mina Ishimaru，Mayuko Tsujimura, Ayumi Wakasugi）
共同研究につき，記載箇所の抽出不可能。
